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SDS Events - Global

Community Calendar

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Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
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Upcoming and Past Events

  • Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    вс, 19 мая
    Virtual. Register at sdsalliance.org/cce
    19 мая 2024 г., 14:00 – 15:00 GMT-4
    Virtual. Register at sdsalliance.org/cce
    Поделиться
  • Global SDS Family Coffee Chat
    Global SDS Family Coffee Chat
    Несколько дат
    вс, 19 мая
    Virtual event
    19 мая 2024 г., 15:00 – 17:00 GMT-4
    Virtual event
    Monthly virtual get-together to build community and support.
    Поделиться
  • SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    сб, 13 апр.
    free virtual event
    13 апр. 2024 г., 13:00 – 19:00 GMT-4
    free virtual event
    This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
    Поделиться
  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    сб, 20 мая
    Virtual event
    20 мая 2023 г., 10:00 – 15:00 GMT-4
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
    Поделиться
  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    вт, 18 апр.
    Robinson College, Cambridge, UK
    18 апр. 2023 г., 09:00 GMT-4 – 21 апр. 2023 г., 13:00 GMT-4
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
    Поделиться
  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    пт, 24 мар.
    Paris
    24 мар. 2023 г., 09:00 – 16:00 GMT+1
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
    Поделиться
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    сб, 30 апр.
    Virtual
    30 апр. 2022 г., 12:00 – 18:00 GMT-4
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
    Поделиться
  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    сб, 24 окт.
    Virtual run/walk, location of your choice
    24 окт. 2020 г., 07:00 GMT-4 – 01 нояб. 2020 г., 23:00 GMT-5
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    Поделиться
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    вс, 12 июл.
    Camp Sunshine, Cosco, ME, USA
    12 июл. 2020 г., 14:00 GMT-4 – 16 июл. 2020 г., 10:00 GMT-4
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
    Поделиться
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    сб, 29 февр.
    Painting with a Twist, North Andover, MA
    29 февр. 2020 г., 14:00 – 17:00 GMT-5
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    Поделиться
  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    вс, 15 сент.
    Boston, MA
    15 сент. 2019 г., 08:00 – 16:00 GMT-4
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    Поделиться
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