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Kids' Corner

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Presented by Ribo & Somi, the Ribosome Superheroes!

Hello friends!

 

This page is just for you, the kids in the SDS community. We have collected many fun videos and printables for you to learn about SDS, science, and the community. Have fun and keep on learning!

Love,

Ribo & Somi

Downloadables &Printables

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Tip for parents: Do you have a kids' event coming up? A birthday party or a rare disease / SDS event at school? The Hero Kids in the Making Coloring Book and the Ribo & Somi Coloring Calendar are available printed and assembled. Check out the order links below. Allow at least three weeks for shipping and handling, or contact us for custom needs at connect@SDSAlliance.org.

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A coloring book with a lovely story written by an SDS dad and illustrated by an SDS child, to help replace fear of hospital and doctors' visits with fun, adventure, and imagination.

Read more about how Elijah inspired his dad to write this story and how the coloring book came about, here.

Download a printable PDF (English, letter size) version or order printed booklets, here.

Other formats and printed copies are available upon request by emailing connect@sdsalliance.org. Please allow several weeks for printing and shipping.

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Now also in Spanish!!!!

Download a printable PDF (Spanish, letter size) version or order printed booklets, here.

Ribo & Somi's Coloring Calendar for coloring and learning

We are seeking volunteers to help with translations into any languages not already done.

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New! The 2024 edition is available in English for download or in print, here:

English (letter size)

Other languages and formats are available by emailing connect@SDSAlliance.org

Currently available: 

  • Español 

  • Français

  • Magyarul

  • Svenska

Books

From our friends at the Immune Deficiency Foundation:

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Mixed Bag

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Videos

Learn about DNA,
genes, and chromosomes.

This great video about DNA is also available in Spanish and Arabic.

Learn about bone marrow, blood cells, and the immune system
Learn about the digestive system, liver, and pancreas
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Shwachman-Diamond Syndrome Alliance Inc.

Social:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441, Woburn, MA 01888

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The Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a 501(c)(3) nonprofit organization dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is a manageable condition and all patients and their families can thrive - through driving research and engaging in advocacy and education.

 

The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. The SDS Alliance was launched in 2020 by the parents of a child with SDS, who are biomedical researchers and entrepreneurs.

 

The SDS Alliance’s leadership and scientific & medical advisors are experienced clinicians and researchers focused on combining the patient-family perspective with solutions based on the best available scientific evidence.

 

Families from around the world are fundamental to accelerating the SDS Alliance’s mission to improve outcomes for all SDS patients, especially populations from diverse backgrounds who don’t have possible stem-cell donor matches. The SDS Alliance intentionally elevates the voices of individuals from diverse backgrounds, the LGBTQ+ community, people with disabilities, and marginalized groups, as they bring critical insight and advance the SDS Alliance’s mission.

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